Category: M.E. chronic fatigue syndrome

It is absolutely impossible for me to rest, never!

I honestly feel that I am involved with Zoey’s care 24/7, like, anyone can contact me at any time with an absolute screw up of their own making and I will deal with it.

Social Care have made so many screw ups it’s just awkward now. Despite the mess they’ve created it’s still the same people making the mistakes who are running the shit show.

One crap care provider after another, each competing with each other to see which can come up with the biggest bullshit to explain why they’re not managing her.

No one, not a one of them, ever has a clue what might be going wrong, it’s sickening. It’s like they are just not there. Sure, they know about the damage Zoey causes in great detail but, not what is actually upsetting her.

You know, Zoey was previously abused by her carers, years ago now. Sadly, any carer who looks like them seems to be a trigger and yet, because looking like them refers to their colour, she is told to just get over it and she keeps getting these triggers but, their hands are tied as they are not allowed to mention this could be a trigger!

I said to them, if she had been abused by a male carer recently, is it OK to say ‘no male carers’ and the social workers said that, of course, that’s OK!

Let’s look at the definition of the groups which cannot be discriminated against:

Oh dear, apparently, gender is included and, as such, social care cannot discriminate about a man but, they say they can.

I wonder, are there any provisions whereby any of the above can be a factor when engageing somebody to work with a vulnerable adult? I would think that, if social care feel a man can be but, someone non white can, there must be such a provision so, is there any workaround?

There are some instances where patients are discriminatory that should be dealt with differently.

These can be categorised under three headings:

1. When a patient’s behaviours are linked to an underlying condition or pathology e.g. mental health illness, dementia.
2. When the behaviour is from a legal guardian of the patient e.g., parent of a child or person who has power of attorney for a patient.
3. When the characteristic of the healthcare worker will affect the physical and mental wellbeing of a patient e.g. requesting a specific gender for a personal or sensitive care, or psychological treatment.

Apparently, there is something which could be used here but, they cannot use it until they acknowledge the previous abuse. Once that is acknowledged they can then state that because a certain characteristic is likely to be a trigger, those who have that cannot work with Zoey.

The bottom line is, for the second time this week, in the middle of the week I am sorting things out which are the responsibility of others because they either do not want to or, don’t know they should.

Friday afternoon, I have another online MDT. I don’t really feel inclined to attend to be totally honest. By no accident it has been arranged just in time for everyone to go home and enjoy their weekend. It is, therefore, really just a tick box thing, we did it and let’s just cross our fingers and hope nothing happens over the weekend.

Anyway, right now, Zoey is under arrest somewhere in Kettering. Because someone employed by social care said she has capacity they had no interest in whether she might need her LPA, they would deal with everything themselves. The phone call was so short as to be rude. Well done social care for that.

There is no outcome from this which is going to be good for Zoey. Everyone was told to do a proper risk assessment, they didn’t. Same as the last lot and the lot before that. This is crisis managment on top of crisis management.

Were I fit and well, I’d be a lot more affective, just now, I don’t have much left to give.