I got a letter today from the specialists in CFS (condition I have) and it effectively said, after a year of waiting … hey, waits for our appointments are really long, here, have this leaflet!
Guess I have to love that I have the NHS here but, the slogan is … free at the point of need.
Except, this used to be the case at inception in 1948. Over the years this has been eroded down to ‘if you live in the right place, at the right time, and have some money, it’s free at the point of need’
The reality is, it’s now rarely entirely free. Gone are the time when the local doctor did house calls or would see anyone the same day if they turned up at the surgery. Many patients give up trying with many surgeries adopting the rule that all patients regardless of urgency must call at 8am and when the appointments are all gone, try again the next day. The result of that is, those who may be really weak don’t get appointments whilst the reasonably fit do. Indeed, potentially someone with cancer symptoms doesn’t get seen for weeks whilst they are beaten to the appointments by those wanting a few days off work. It’s totally crazy.
No medical service should rely on luck to get seen. No wonder Emergency departments are always full, all those who cannot get to see their GP!
Then we have hospitals. Originally, most were just a short walk or bus ride away from their hospital, for those who drove there would be parking onsite or nearby and it was free.
Not any more, for many it can take hours on public transport and most car parks charges start at £3+
Anyway, enough generic chatter about the state of the NHS in 2022!
I was struggling prior to getting covid in June this year (22). Covid itself wasn’t really any worse to me than a cold, I have felt much worse for sure. However, once I checked as negative the real problems started.
- My temperature won’t regulate, I get hold and cold regardless of the outside temperature or my body temperature. It is 20°C in here just now and I am sweating like it’s 30°C.
- My stomach cramps and I have to ‘go’ quite suddenly and it makes a mess
- My stamina has taken a nosedive.
- Eyesight really is very changeable
- Chest pains
None of those has got a solution from the GP. Some they say ‘long covid’ which is effectively the condition I already had so, just adding some more symptoms.
With my chest pain I am waiting around 3 months for a thorough scan. For the tummy they plan on shoving a camera up my arse but, I got at least 3 months before they give me an appointment and who knows how long that will be?
With stress my energy level drops rapidly. Any sort of stress. It is why I try to impress on others , if I ask you a question, answer me. Being fobbed off raises my stress. I am also finding myself acting as an inbetweener passing messages on for people who could just speak directly to each other. Each time this wastes even more energy I cannot spare.
You must understand, I don’t get energy like ‘normal’ people.
Let me give you an example:
On Monday I can get up at 8.30am and when I wake I feel like it is 2am. I will then push through the day trying to keep going but, my mind is so active with the things I couldn’t physically achieve that I cannot then sleep until I wear out my mind.
My mind is used to life feeling like it is 2am, it never gets better than that and so, it’ll likely be literally 2am (or later) before I get to sleep.
Tuesday I am up at 8.30 but it feels like 2am, yes, I feel the same as I did before I went to bed. I will push through the day but hit a problem I was not expecting at 10am. By 11am it feels to me like it is 5am and I didn’t sleep yesterday either. I push through but, I am not able to concentrate on anything and everything bothers me. Pain, talking, listening, light, sound, everything. I go to bed around 2am
Wednesday I wake up 8.30, it feels like 2am for the first half hour and then I feel that 5am feeling creep in over around 5-10 minutes, it’s very clear to me when it is happening. I barely function on any worthwhile level and concede to a nap at 3pm. I wake at 4.30pm feeling like it’s 3am
This just keeps going on and on, one similar situation after another. I honestly cannot remember what it feels like to be actually properly awake.
Throughout this, I look normal. People life at my failed attempts to talk, some joker may ask if I have had the one too many. Yes, that’s so very funny (not). Others will ask what is bothering me like, if I can find that one thing it’ll all go away. They mean well but don’t actually understand it. many will have known me how I used to be and won’t accept this change, they keep burying their heads in the sand waiting for me to just be ‘me’ again.
What I need is actual physical help. If I look like I am struggling you can betcha I was struggling way before that.
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