It is absolutely impossible for me to rest, never!
I honestly feel that I am involved with Zoey’s care 24/7, like, anyone can contact me at any time with an absolute screw up of their own making and I will deal with it.
Social Care have made so many screw ups it’s just awkward now. Despite the mess they’ve created it’s still the same people making the mistakes who are running the shit show.
One crap care provider after another, each competing with each other to see which can come up with the biggest bullshit to explain why they’re not managing her.
No one, not a one of them, ever has a clue what might be going wrong, it’s sickening. It’s like they are just not there. Sure, they know about the damage Zoey causes in great detail but, not what is actually upsetting her.
You know, Zoey was previously abused by her carers, years ago now. Sadly, any carer who looks like them seems to be a trigger and yet, because looking like them refers to their colour, she is told to just get over it and she keeps getting these triggers but, their hands are tied as they are not allowed to mention this could be a trigger!
I said to them, if she had been abused by a male carer recently, is it OK to say ‘no male carers’ and the social workers said that, of course, that’s OK!
Let’s look at the definition of the groups which cannot be discriminated against:
Oh dear, apparently, gender is included and, as such, social care cannot discriminate about a man but, they say they can.
I wonder, are there any provisions whereby any of the above can be a factor when engageing somebody to work with a vulnerable adult? I would think that, if social care feel a man can be but, someone non white can, there must be such a provision so, is there any workaround?
There are some instances where patients are discriminatory that should be dealt with differently.
These can be categorised under three headings:
When a patient’s behaviours are linked to an underlying condition or pathology e.g. mental health illness, dementia.
When the behaviour is from a legal guardian of the patient e.g., parent of a child or person who has power of attorney for a patient.
When the characteristic of the healthcare worker will affect the physical and mental wellbeing of a patient e.g. requesting a specific gender for a personal or sensitive care, or psychological treatment.
Apparently, there is something which could be used here but, they cannot use it until they acknowledge the previous abuse. Once that is acknowledged they can then state that because a certain characteristic is likely to be a trigger, those who have that cannot work with Zoey.
The bottom line is, for the second time this week, in the middle of the week I am sorting things out which are the responsibility of others because they either do not want to or, don’t know they should.
Friday afternoon, I have another online MDT. I don’t really feel inclined to attend to be totally honest. By no accident it has been arranged just in time for everyone to go home and enjoy their weekend. It is, therefore, really just a tick box thing, we did it and let’s just cross our fingers and hope nothing happens over the weekend.
Anyway, right now, Zoey is under arrest somewhere in Kettering. Because someone employed by social care said she has capacity they had no interest in whether she might need her LPA, they would deal with everything themselves. The phone call was so short as to be rude. Well done social care for that.
There is no outcome from this which is going to be good for Zoey. Everyone was told to do a proper risk assessment, they didn’t. Same as the last lot and the lot before that. This is crisis managment on top of crisis management.
Were I fit and well, I’d be a lot more affective, just now, I don’t have much left to give.
Mothers who genuinely believe only they are uniquely capable of raising children
Women who have been surrounded by women dealing with women their entire career who just do not really understand why a man is trying to raise children
Women who feel men are heroes for doing what every parent should do regardless of gender
Organisations which are mainly female dominated such as education, health, social care and so on who instinctiverly look for the Mrs to write to or telephone and then, when they cannot find her, wonder if the ‘father’ perhaps needs some parenting support because, it won’t come naturally to him.
Yes, those above groups are the main offenders but, let’s not forget the:
Men who feel the place of a woman is in the home, doing the cooking, cleaning and raising the kids, after all, Mums’ gone to Iceland.
Mothercare because, only mothers need to buy nappies
Mother and toddler groups, yes, they still exist
Netmums. Isn’t it strange as that is seen as a group of mums just being mums whereas a male group trying to do the same thing would be seen as political.
The assumption that men are potential abusers whereas, ‘mothers’ could never do such a thing.
Those who feel on a mother can truly ‘get it’.
Only a mother can comfort a screaming child
Yes, I have experienced all of the above. I’d like to say only once or rarely. I’d like to say that in 2024 it doesn’t happen but, yes it does. The assumption is still there that really, they’d all rather be dealing with their mother. That any claims of inappropriate behaviour or risk a father might mention about the mother if not taken seriously as ‘obviously’ he has an agenda.
Then there is this widely held belief, held as much by men as men, that men are just not cut out for it, they just are wired wrong. Lazy arsed me go along with it because, frankly, that means the mother changes the nappies and, women persist in the belief to maintain their central role.
Above ar the top 8 searches for ‘parent uk’ on Google
Reassuring that the first is actually a man every other one is either a man, woman and child or just a woman and child.
That’s an absolute random snapshot, nothing scientific.
Do you understand that in many cultures, many of which now form part of multicultural Britain, genuinely believe there is something wrong if a male is parenting on his own, To do so much mean that there was a mother but, she has obviously and sadly died and even then, the role would be expected to be done by the nearest female surviving relative.
Go to a parent and child swimming session at the local pool, men are stared at as though they are a threat.
Look, if you think I am wrong, leave a comment and say why, insults and crap will be ignored by well researched real world comments are welcome.
I have not seen beyond episode 4, I nearly didn’t watch that episode to the end, it was very difficult for me. So many memories of my own experience.
Spoiler Alert
From this point in, some or a lot of what I am going to say might spoil the series for you up to this point but I am only saying it for some context.
What did happen to me?
A little history of me
I have always suspected strongly I was gay. My main issue was, I had actually no idea what that meant. What I knew for sure was that I felt uncomfortable around other men. I thought there was something, some point about being a man I totally didn’t get. They all seemed so confident, they didn’t seem to care what others guys thought, they acted like I was weird if I complimented them. Doing so felt natural for me, I thought it was just that, ‘natural’ to compiment someone. In my teens years I come to understand, just a little more, what fancying men was all about. It is fair to say I was heavily conflicted. If I knew anything I knew for an absolute fact that I could not be gay. There were some very obviously gay men on TV and I most certainly wasn’t like them. Let me give you an example of those men:
What we have here is John Inman, Larry Grayson & Quentin Crisp. I was a million miles away from any of those guys. On TV the first two never openly came out as gay to the best of my knowledge but ‘everyone knew’ they were, you know, queer. The last one, Quentin Crisp only became famous following a story in which the actor John Hurt played him.
There was nothing about any of those men which I related to, nothing at all. If that was what being gay was, perhaps, well, just maybe I wasn’t gay at all, I just somehow found other guys attactive and it would be those other guys which would form all of my sexual fantasies.
But, there was another issue at play, I wanted to be a dad and had zero interest in girls, never even had any friends who were girls let alone a ‘girl friend’. You see, I say that, by my early 20’s I had maybe 1 and a half girlfriends. I was that naive that I didn’t notice that one of them just pretended to be my girlfriend to make the guy she wanted to be her boyfriend jealous. This other girl, I am sorry, I don’t recall her name (it’ll come back to me), she was a girl from the office and she seemed really into me in every way which was important ‘to her’ and, I felt nothing. Neither attraction or desire.
In 1983 I did though get a boyfriend. A true boyfriend in every sense except in the most important, nothing we ever did was legal. When we started it was illegal for us both to be together and by the end of it, two years later, it was just illegal for him but, by defintiion, as I was having a sexual relationship with someone under 21, I was a criminal.
After that ended through a really bad assumption that I was seeing someone else on his part (I wasn’t) I was single again. He was the only guy I’d ever had any form of sex with, we had never gone all the way and had anal sex, all very vanila.
Soon after, I met the girl I would end up marrying. I knew on my wedding night it was a terrible decision. Not because of her but because, I then realised just how long forever could be.
The sex wasn’t unbearable, it was a function, nothing more and I always suspected she got way more from it than I ever did. Within 9 years the marriage had changed. She’d known I was gay from the first weel but chose to believe I meant ‘bisexual’ and I didn’t want to argue. But in 1995 I told her I couldn’t do the sex part any more, I didn’t enjoy it, it stopped me being the person I really was, that it made me unhappy every time that I was acting a part, living someone else’s ideal.
We moved to Northampton, it doesn’t matter why, we just did. In 1998 I told her that I needed to fully come out as a gay man, have gay friends and explore that side of me. I was 35 and I realised I’d long since stopped being a gay boy, I had gotten much too old for that.
I met a man who became a good friend. He really got me out of myself. I enjoyed him touching me and showering me with compliments. He even liked going out with me with all the kids as well. A true friend.
However, and this is where the connection is between me and episode 4 of Bay Reindeer, something happened. He said he wanted to give me the most amazing birthday ever in 1999, my 36th. We would go clubbing in London (I’d never been), he said, I might even meet someone. I got very drunk. I don’t recall the drive home. I say home, I’d agreed to stay at his place as the kids were already sorted for the night. He told me the guest bed wasn’t clean and suggested I sleep in his bed, I was beyond caring from what little I recall.
I was asleep when I felt him fucking me. I’d never had anal sex in my life, never, it wasn’t something I’d ever thought much about and here was this man fucking me. I tried to pretend it wasn’t happening as, no one would do that, not without asking but, it was happening. Before I knew it, he withdrew and wiped his cum from my arse! I went back to sleep.
He asked the next day if I had enjoyed myself the day before, he didn’t mention the sex. I wanted him to because I couldn’t. The words just wouldn’t come out. For days I panicked. I worried I might have HIV. I even not very descretely asked him several days later if getting HIV ever worried him as he didn’t use protection. He told me that as his age he didn’t much care. He didn’t like sex with a condom so he was prepared to take the risk, I did some sort of stupid giggle, I felt sick.
I went to the ‘GUM clinic’ after a week or so. I felt so dirty, I never thought I would ever need to go into one of those places and there I was. I made up some crap story, I don’t ever remember what it was to get a HIV test. Of course, at the time I could have said I was a gay virgin and they’d have eventually suggested a HIV test. I think it took two longest ever weeks to get the all clear result. I had a choice. I knew I’d never be able to prove that what happened did happen so, I either carried on with us being friends because, after all, he was the key to my entire social life else, I say some crap excuse and move on. I decided that moving on only hurt me more so I acted like nothing happened.
I genuinely loved that man. Not in any romantic sense but he was the man who helped me work out what sort of gay man I was and to ignore what others thought I should be.
When I past away I was heartbroken, genuinely, one of the more painful times of my life.
Ever since his passing I have suppressed what really happened but, I cannot do it. Again, for me to understand who I am, to know why sex for me now is so shit, I had to go there back to the early hours of June 5 1999..
Yes, I had sexual relationships since then and they were OK but, they were always things I personally and emotionally had to work at. I was too often taken back to that uncomfortable memory and my mind would race killing the moment,
Did I enjoy the experience with him? I genuinely do not know. It was incredibly painful, I know that. Later in the day I remember a very painful explosion of shit and blood, I felt so dirty, so cheap. Actually, incredibly lonely. But, you know what? That doesn’t matter, that is falling into the victim trap.
If I had enjoyed it, would it still have been wrong?
Yes, undoubtadly I was raped. At no point did we ever have any conversation about anal sex beforehand and at no point did he ever ask my permission to fuck me. Had he asked me, I would have said no, I wasn’t ready to do that with him or anyone else. He took away my right, my absolutely right to choose when I did that. I would have chosen a time when I was with a man I truly loved as an act of love.
Do you know, and I am not saying who, there was only really one man I loved enough to enjoy the experience, where we could laugh about failures say yes or no and it never mattered. Both of us in that relationship were, as I am, 100% versatile, that we both equally enjoyed each aspect, each so called ‘role’ in gay sex. With every other guy. and with some it was just ‘too soon’ but, with other guys it was uncomfortable, it became a function with someone I didn’t really know. That part I know was what changed in me on June 5 1999. I lost my trust in someone else.
I do not think I will ever get over it. This year will mark 25 years since it happened. For sure it is healthy for me to be opening up about this. Some might find it strange or unfortable to read this. Others might ask why now? Why say this about a man who cannot defend himself? My answer is simple, I still loved him enough not to mess his life up whilst he was alive. But, likewise, I love me enough not to allow my life to be messed up because of a decision he made without asking me first.
He always described himself as a narcissist* which, made no sense to me at the time, I always thought he was just being modest. Looking back though I now realise that those of us who benefitted from him in any way did so at his pleasure.
*Narcissistic personality disorder is a mental health condition in which people have an unreasonably high sense of their own importance. They need and seek too much attention and want people to admire them. People with this disorder may lack the ability to understand or care about the feelings of others
I have mentioned this before but, I am sure others find it difficult to recognise that any of this applies to me.
One of the side effects of it is that the sufferer (that’s me) keeps pushing through which is actually the very worst thing which can be done.
Take a look at these posters showing the typical symptoms.
I am going to concentrate on the last poster and explain it, how it relates to how I am …
Muscle Pain – Can be severe and is random across my body and can change throughout the day. It’s rarely a ‘real’ pain in that, there is no injury or damage creating it. What happens is that the pain receptor nerves randomly fire sending signals to the brain identical to those as if there were a physical injury so, to me, it’s very real.
Joint Pain – Much the same as Muscle pain only this one creates confusion with my joints leading to weakness which are the cause of falls.
Post-exertional fatigue – This doesn’t differentiate between physical or mental exercise.. In a ‘normal’ person they can have a run and the recovery time is really quick. If I were to run it could use all the available energy I have for that day. Just typing this out for you is killing my available energy. Prolonged exertion such as several days of a ‘work’ equivalent will often take weeks to recover from needing considerable bed rest, more on that later.
Chronic Fatigue – This is the ‘normal’ state for me. I never feel fully awake, never ever. Imagine how you would feel if you lost a complete night sleep. That is how I feel on a good day. On a bad day it is two nights sleep and jet lag.
Brain Fog – This one looks like dementia which scares the hell out of me. Going into a room and not remembering why is common. Forgetting names or muddling names up. Not recalling simple words in conversations.
Memory Issues – This isn’t much difference to brain fog but specifically it refers to not being able to learn new things, such as a language. Having a lesson and understanding it but, losing it all really quickly.
Concentration Difficulties – In me this is such things as struggling to watch a TV show or a movie
Headaches – Thankfully, this is one I rarely get.
Sleep Dysfunction – This is a huge part of it. Essentially, this illness stops my brain from recognising when I have slept. A sleep monitor will show several hours of REM sleep yet, my brain registers nothing. It is similar to those people who don’t register they’ve eaten and always feel hungry. It is also not something whereby I can logic my way out of it. Even though I know I slept OK, the chemicals my body would produce with sleep to refresh me, don’t get produced. Several hours sleep might be needed just to achieve a minimal increase in energy levels.
Heat/Cold Intolerance – This is quite bizarre. It is around 14°C in this room and yet I am sweating. If I picked up a cool can of drink, I’d find it uncomfortably cold. It is why I now must have a car with a heated steering wheel and air conditioning. Things which used to be a luxury have become a medical essential.
Marked weight gain/loss – This one makes perfect sense. If I cannot exercise as I used to then unless I reduce my food intake radically, I am going to put on weight quickly.
Flu like symptoms – Again, I am fortunate that this doesn’t happen often. That said, other symptoms I shall mention later do resemble this.
Sweats – Not in the last list but in others and related to the point above. I randomly sweat and feel really hot and this has nothing to do with the temperature. It is annoying during the day but, it wakes me up at night to the point I will throw the bed clothes off and then wake up some time later shivering.
New Sensitivities – For me this is light and sound. I find many sounds uncomfortable. Even music I have put on myself can become uncomfortable after a while. I love bright light, a glorious sunny day is heaven to me but, at the same time, really painful.
Tender Lymph Nodes – Yes, this is true but, it doesn’t trouble me as it seems so minor by comparison.
Sore throat – Yes but again I don’t see this as particularly worrying
Orthostatic Intolerance – I feel this is too closely connected to some of the earlier points to deserve a separate mention. Needless to say, I find just standing very uncomfortable.
Vertigo. palpitations – Not something I suffer from
Irritable Bowel Syndrome – Most definitely and one of my main reasons for never wanting to stay in someone else’s house. Alongside this is severe bloating and discomfort. When I have to go it is consistently explosive and creates a huge mess. Again, one of the reasons not to be somewhere I can’t easily clean up. Just about anything can bring it on.
Bladder Dysfunction – My bladder can ‘forget’ to tell me I need a pee for an age and then it goes from not needing to pee to major bladder emergency in minutes!
So, that breaks it down for you.
What can you do to help me?
Don’t have expectations that I can do what it looks like I can do
Don’t be shocked if I use a walking stick or an electric scooter to get about
Do ask questions if you are unsure about what I can do, it will change from day to day
Please don’t question my decision not to drink alcohol, it makes my condition worse very quickly.
Please, don’t be offended if I appear anti-social. It just means I have run out of energy and need to rest.
If I seem angry just ask me if I am OK, it’s most likely I am really struggling to get through my day and will need some help.
Talk to me like I am ‘normal’. I don’t have dementia even if it seems like it! I am just really, really tired.
If I am driving and say I need to pull over for a nap, allow that to happen, indeed, encourage it.
Make sure I drink plenty of water, dehydration is a common issue.
If I cannot learn your language it is not because I don’t want to or I am not trying. My brain just isn’t functioning at that level much of the time. Never give up trying though. Just try not to get frustrated as, there is no point, your frustration is nothing compared to mine.
If I mess up my words or get yours and everyone else’s name wrong, it’s OK to laugh about it, it is how I deal with it.
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