HWA

Me and Matt went up to see her.

She’s still not talking. If she gets really angry she will no doubt say something but it’s obvious that in everyday interaction she is forcing herself not to talk.

In every other way she is interacting. Body language and expression are there and she cannot hold on to her laughs.

She’s reluctantly having her injections for the infection.

She’s still not really cooperating with hygiene but it is being done.

Food and drink seem to be OK and she has a good colour.

For some reason she is still in pads and they tell us it will take a continence expert to make that change … I’d have thought removing the pads from her room and giving her knickers instead would be a quicker way but, what do I know apart from the fact that I already potty trained her once!

So, apart from the not talking which I know really bugs Matt, she seems to be well on the mend. If it turns out the UTI was not the cause of all these problems though we have an issue. Even if we get her back, who is to say it won’t all start again at a moments notice?

I am at a point where I am not stressing about it. I can’t change anything, if I become very broke then that’s what happens.

I’ve noticed that I now have a considerable amount of grey hair coming through, all part for falling apart I guess, we all have to go there at some point. No one seems to believe I’ve not been using colour for years anyway!

Very brief this

After numerous complaints, all upheld, a full time LD nurse has now been put in place. Zoey starts a course of antibiotics today.

She is eating and drinking regularly and sleeping OK.

She is also communicating a lot more.

Had a slight strop earlier, she still argues she doesn’t want to get better or have anyone look after her but, well, let’s see how she is once the UTI is sorted.

She will be on a Section 3 next week but staying where she is.

Not ‘Man Flu’ or any type of flu, just a cold but, all the same, rather annoying and unpleasant.

I was woken up the other night with a nose bleed, hey, don’t jest, Attila the Hun had a nose bleed in his sleep and it killed him!

Right now I am amazed at the production rate of unpleasant gunk in my head tubes, I am already on handkerchief number 3 of the day and it’s not 11am yet.

My eyes, wow, stinging much!

Aching? Yes, I’d say that’s sums up most of my body.

Headache, yep, medication not touching that.

Mega tired. I am out this evening so, need to get some more sleep.

Appetite disappeared somewhere, not up for eating just yet.

My farts really stink, it’s embarrassing!

I am hot, and cold, and hot again.

Can’t really hear much or smell and seeing is a little vague.

So, like I said, a cold. Unpleasant, annoying but I am not dying, life goes on and in a few days it will be gone.

4 Hours out of my life and what a waste of time. OK, not entirely a waste of time but any gains were coincidental.

I was invited to go along to a meeting at 3pm, the meeting started at 3:50!

The section 2 expires for Zoey at midnight on Tuesday so you’d think the professionals would be in a mad panic to work out what is happening next but, no, not one of them came to the meeting today with any clue what is going to happen next week.

How is this for logic:

They cannot lawfully keep her there as of midnight Tuesday, that’s not possible because there is no section 2. They cannot issue a section 3 without having a game plan on what services to provide, they know this. The services she needs cannot be provided to an adequate level where she is, they know that too. They want her in a LD unit in Kettering except, that is unsuitable because it is all male at the moment and all have challenging behaviour incompatible with Zoey’s best care. Even so, the LD Psychiatrist today said that a bed might be free there in two weeks time! She said it like it was the solution they were looking for until I pointed out that it would be two weeks after they are required to provide somewhere AND, there would still be 3 unsuitable male patients there.

I mean, this isn’t rocket science, do intelligent people lose all common sense?

They kept going away to have their little secret meetings. The final of these was passed on to us by a third party as the two psychiatrists didn’t want to talk to me again. They’ve decided that Zoey needs a section 3 order but that they don’t have anywhere suitable …. at all! They’ve had nearly 4 weeks to come up with somewhere suitable yet now, with less than a week to go, they don’t got anything and having started to look out of county!

On the plus side, me and Anne met Mike, the advocate who has been appointed for Zoey today and we were able to share with him out concerns and he’s putting a safeguarding complaint in. He agreed that what they’re doing there is a form of abuse, most certainly neglect.

The experts still can’t seem to agree whether or not Zoey lacks capacity, not legally. They say that clearly she isn’t able to make judgements on her own care but they’re not sure this constitutes legal lack of capacity! In the meantime, whilst they ponder this, Zoey is getting medication for her UTI. On the subject of the UTI, the nurse in the ward says she’s only had it since yesterday! I had nurses with years of experience telling me they suspected an UTI when she was at Northampton General Hospital! For some reason, Berrywood Hospital have decided to overlook the query on the UTI which would have been in her notes and declare it’s all somewhat new so not desperately urgent. Apparently, UTI’s can have all sort of behavioural consequences too but, no matter, they’re still not sure they can force medication so we’ll let that go then!

I am very strongly considering adapting the house here to have her home again. I am running out of alternate options!